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This privacy notice explains how the Department for Education (DfE) uses (processes) any personal data you give to us, or any that we may collect about you as part of the (ECHILD)鈥痯谤辞箩别肠迟.听

The ECHILD鈥痯roject originated at University College London (UCL) and was created in partnership with NHS England (NHSE) and DfE and funded by Administrative Data Research (ADR) UK.听听

For the purposes of relevant data protection legislation, DfE is the data controller for personal data鈥痯rocessed by DfE as part of ECHILD. Separately UCL is the data controller for personal data processed and shared by them as part of ECHILD. Further information about the UCL role in ECHILD is available through their own .听

You can contact us:听

• for more information about how we process your personal data or your data protection rights听

• to make a request about your information, for example to request a copy of your information or to ask for your information to be changed听

• to contact our Data Protection Officer听

How we use your information听

ECHILD has been created for research purposes only. There are strong protections in place to ensure that ECHILD data is used in line with the purposes outlined in the data sharing agreements and meet the legal requirements for all uses to be in the public interest.听

The ECHILD database has been through a number of ethics assessments before it was created. Data that is comprised of health information is governed by (IGARD). Data proposed for usage under the ECHILD programme was subject to clearance from the before IGARD approval was granted. The proposal was also granted approval from .听

The ECHILD project links education and health data together to provide an evidence base to allow policy makers to better understand how health can impact education and how education can affect health. For example, the research planned by DfE using ECHILD 颈苍肠濒耻诲别蝉:听

• what is the impact of educational outcomes on health, social care and wellbeing of children and young people?听

• whether there are differences in the health and educational outcomes of vulnerable children and young people when compared to other children and young people

• investigate the drivers of health inequalities for children in need and looked after children and whether any identified inequalities affect their educational outcomes

• assessment of the long-term impact of COVID-19 on both education and health of children and young people

Data we use

ECHILD holds different categories of data for different cohorts of individuals depending on the nature of their interactions with the education, children鈥檚 services and health sectors. The data sources included are as follows:

• national pupil database听

• 听

• 听

• 听

• 听听

Full details of the data fields included in ECHILD are available from the ECHILD .听

Linking the data听

To make the pseudonymised data link for ECHILD, information relating to the same person is linked by using identifiers, such as:听

• names听听

• date of birth听听

• addresses听听

These are held in the source data. This information is shared with those responsible for linking the data, in this case NHS England.听

Once the link is made, all personal identifiers are then removed and replaced in the data linking process by a reference number that has been generated specifically for creating ECHILD. This ID number is unique to ECHILD and not used in any existing operational systems. Researchers, including anyone permitted to access ECHILD in DfE, will then only have access to the data with the personal identifiers removed and the anonymised reference number assigned. It is therefore not possible for DfE to identify individuals in ECHILD.听

This process is referred to as pseudonymisation. Further information on pseudonymisation can be found from the .听

Lawful use of personal data听

To enable our use of your personal data to be lawful, we need to meet one or more conditions in the data protection legislation. For the purpose of this project, the relevant conditions are:听

• article 6(1)(e) GDPR, to perform a public task as part of our function as a department听

• article 9(2)(g) GDPR, to process special category data for reasons of substantial public interest听听

DfE is able to rely on these lawful bases provided it is 鈥渆xercising a function鈥�. The function which we are exercising with regards to ECHILD is the duty of the Secretary of State for Education to 蜑promote the education and well-being of children in England. There are various pieces of legislation which set out that function which include, and section .听

In addition to these functions, all other relevant data sharing and data protection legislative frameworks have been met to ensure our processing and use of ECHILD remains lawful at all points. This includes ECHILD being governed by legally binding data sharing agreements which ensures a framework for appropriate processing, including:

• the contents and duration of the share听听

• permitted uses of the data听听

• the legal basis and justification for processing听听

• the protections in place听

Data storage听

ECHILD is not held in DfE and rather is stored and processed in the . The ONS SRS is a globally recognised Trusted Research Environment (TRE). The ONS SRS protects the data it makes available by adopting the .听

To ensure that health and education identifiers do not leave the secure health servers, the pseudonymisation process takes place at NHS England and only the pseudonymised data is stored in the ONS SRS.

The ONS SRS does not store personal data outside the UK and, as such, there is no storage or processing of ECHILD outside the UK.听

Who we will make your personal data available to听

The data processed by DfE as part of ECHILD (for which DfE is the data controller) is only made available through the ONS SRS to analysts and researchers employed by DfE who are trained and accredited in accordance with the UK Statistics Authority (UKSA) .听听

Beyond ONS as the service provided for the ONS SRS, the ECHILD data for which DfE is the data controller is not shared externally by DfE with any third parties.

See the UCL ECHILD for details of any onward sharing through the ONS SRS of the version of ECHILD for which they are the data controller.听

How long we will keep your data as part of ECHILD听

The data in ECHILD will only be kept for as long as we need it for the research and statistical purposes it was originally created for. Under data protection legislation, and in compliance with the relevant data processing conditions, personal data can be kept for longer periods when processed purely for research and statistical purposes.听

Currently the ECHILD data will be available to DfE through the ONS SRS until at least 31 December 2025. Between now and that point, the retention and ongoing benefits of the dataset will be reviewed on an ongoing basis and should decisions be made to update the data and/or extend its retention, this privacy notice will be updated.听

Your data protection rights听

Under the Data Protection Act 2018, you are entitled to ask us for:听

• the right to access - you can ask if we hold information about you and ask for a copy by making a 鈥榮ubject access request鈥櫶�

• the right to rectification - you can request to correct any information you believe is inaccurate听

• the right to erasure - you can request for your information to be erased, under certain circumstances听

• the right to restrict processing - you can request that we restrict the processing of your personal data, under certain circumstances听

• the right to object to processing - you can object to鈥�DfE鈥檚 processing, under certain circumstances听

More information on how to request this, and about how DfE handles personal information, is published in our鈥�personal information charter.听听

As ECHILD is pseudonymised before being made available to DfE, and DfE do not hold the linking keys to re-identify the data, any requests should be made to the party holding the original source data. 听

Further information about your data protection rights is available on the鈥�.听

How to complain听

If you have a question, or feel your data has been mishandled, you can contact Emma Wharram, DfE Data Protection Officer:

You can also complain to the鈥疘nformation Commissioner鈥檚 Office:听

Changes to this privacy notice听

We may need to update this privacy notice periodically, so we recommend that you revisit this information from time to time. This privacy notice was last reviewed in July 2024.